Measurement of Courtesy Stigma: Systematic Literature Review

Main Article Content

Daniel Augusto Costa Maldonado
Thaís Soares Pereira
Leonardo Fernandes Martins
Telmo Mota Ronzani

Abstract

This article aimed to conduct a literature review regarding instruments used to measure the stigma of courtesy, in the databases related to the field of investigation (PsychNET, PubMed, Virtual Health Library Brazil – Biblioteca Virtual em Saúde [BVS] Brasil, Capes Publications Portal, Scientific Electronic Library Online [SciELO], and Electronic Journals in Psychology – Periódicos Eletrônicos em Psicologia [PePSIC]), using the descriptors courtesy stigma, affiliate stigma and associative stigma. Five hundred and sixty-four articles were retrieved, and, after the exclusion criteria were evaluated, ten were selected. Positive correlations were noted between courtesy stigma and depression, anxiety, caregiver burden, burnout, awareness of public devaluation, and awareness of stigma. Quality of life, social support, self-esteem, quality of care, and social desirability presented negative correlations with the construct studied.

Downloads

Download data is not yet available.

Article Details

Section
Artigos

References

Bagherian-Sararoudi, R., Hajian, A., Ehsan, H. B., Sarafraz, M. R., & Zimet, G. D. (2013). Psychometric properties of the Persian version of the multidimensional scale of perceived social support in Iran. International Journal of Preventive Medicine, 4(11), 1277–1281. https://pubmed.ncbi.nlm.nih.gov/24404362/

Banga, G., & Ghosh, S. (2017). The impact of affiliate stigma on the psychological well-being of mothers of children with specific learning disabilities in India: The mediating role of subjective burden. Journal of Applied Research in Intellectual Disabilitites, 30(5), 958–969. https://doi.org/10.1111/jar.12311

Beck, A. T., Epstein, N., Brown, G., & Steer, R. A. (1988). An inventory for measuring clinical anxiety: Psychometric properties. Journal of Consulting and Clinical Psychology, 56(6), 893–897. https://doi.org/10.1037//0022-006x.56.6.893

Chang, C. C., Su, J. A., & Lin, C. Y. (2016). Using the Affiliate Stigma Scale with caregivers of people with dementia: Psychometric evaluation. Alzheimer’s Research & Therapy, 8(1), 45. https://doi.org/10.1186/s13195-016-0213-y

Chang, C.-C., Su, J.-A., Tsai, C.-S., Yen, C.-F., Liu, J.-H., & Lin, C.-Y. (2015). Rasch analysis suggested three unidimensional domains for Affiliate Stigma Scale: Additional psychometric evaluation. Journal of Clinical Epidemiology, 68(6), 674–683. https://doi.org/10.1016/j.jclinepi.2015.01.018

Chou, K. R., Jiann-Chyun, L., & Chu, H. (2002). The reliability and validity of the Chinese version of the Caregiver Burden Inventory. Nursing Research, 51(5), 324–331. https://doi.org/10.1097/00006199-200209000-00009

Dehnavi, S. R., Malekpour, M., Faramarzi, S., & Talebi, H. (2011). The share of internalized stigma and autism quotient in predicting the mental health of mothers with autism children in Iran. International Journal of Business and Social Science, 2(20), 251–259.

Farzand, M., & Abidi, M. (2013). Effects of mental illness stigma on social identity and social isolation among family caregivers of psychiatric patients. International Journal of Medical and Pharmaceutical Sciences, 4(1), 31–40.

Galvão, T. F., Pansani, T. de S. A., & Harrad, D. (2015). Principais itens para relatar revisões sistemáticas e meta-análises: A recomendação PRISMA. Epidemiologia e Serviços de Saúde, 24(2), 335–342. http://dx.doi.org/10.5123/S1679-49742015000200017

Goffman, E. (1975). Estigma: Notas sobre a manipulação da identidade deteriorada (M. B. de M. L. Nunes, Trad.). LTC.

Hailemariam, K. W. (2015). The psychological distress, subjective burden and affiliate stigma among caregivers of people with mental illness in Amanuel Specialized Mental Hospital. American Journal of Applied Psychology, 4(2), 35–49. https://doi.org/10.11648/j.ajap.20150402.13

Halbesleben, J. R. B., & Demerouti, E. (2005). The construct validity of an alternative measure of burnout: Investigating the English translation of the Oldenburg Burnout Inventory. Work & Stress, 19(3), 208–220. https://doi.org/10.1080/02678370500340728

Howard, M. C. (2016). A review of exploratory factor analysis decisions and overview of current practices: What we are doing and how can we improve? International Journal of Human-Computer Interaction, 32(1), 51–62. https://doi.org/10.1080/10447318.2015.1087664

Huang, C.-H., Li, S.-M., & Shu, B.-C. (2016). Exploring the relationship between illness perceptions and negative emotions in relatives of people with schizophrenia within the context of an affiliate stigma model. The Journal of Nursing Research, 24(3), 217–223. https://doi.org/10.1097/jnr.0000000000000124

Lin, C.-Y., & Pakpour, A. H. (2017). Using Hospital Anxiety and Depression Scale (HADS) on patients with epilepsy: Confirmatory factor analysis and Rasch models. Seizure, 45, 42–46. https://doi.org/10.1016/j.seizure.2016.11.019

Lin, X., Rosenheck, R., Sun, B., Xie, G., Zhong, G., Tan, C., Li, Z., Yu, M., & He, H. (2018). Associative stigma experienced by mental health professionals in China and the United States. Social Psychiatry and Psychiatric Epidemiology, 54(6), 745–753. https://doi.org/10.1007/s00127-018-1643-6

Liu, H., Xu, Y., Sun, Y., & Dumenci, L. (2014). Measuring HIV stigma at the family level: Psychometric assessment of the Chinese Courtesy Stigma Scales (CCSSs). PloS One, 9(3), e92855. https://doi.org/10.1371/journal.pone.0092855

Luhtanen, R., & Crocker, J. (1992). A collective self-esteem scale: Self-evaluation of one’s social identity. Personality and Social Psychology Bulletin, 18, 302–318. http://dx.doi.org/10.1177/0146167292183006

Mak, W. W. S., & Cheung, R. Y. M. (2008). Affiliate stigma among caregivers of people with intellectual disability or mental illness. Journal of Applied Research in Intellectual Disabilities, 21(6), 532–545. https://doi.org/10.1111/j.1468-3148.2008.00426.x

Malagodi, B. M., Greguol, M., Carraro, A., & Serassuelo, H., Junior. (2019). Estigma internalizado de indivíduos em tratamento para dependência química e sua relação com a prática de atividade física. Movimento, 25, e25050. https://doi.org/10.22456/1982-8918.84970

McCann, T. V., & Lubman, D. I. (2017). Stigma experience of families supporting an adult member with substance misuse. International Journal of Mental Health Nursing, 27(2), 693–701. https://doi.org/10.1111/inm.12355

Montazeri, A., Vahdaninia, M., Mousavi, S. J., & Omidvari, S. (2009). The Iranian version of 12-item Short Form Health Survey (SF-12): Factor structure, internal consistency and construct validity. BMC Public Health, 9, 341. https://doi.org/10.1186/1471-2458-9-341

Nakagawa, S., Johnson, P. C. D., & Schielzeth, H. (2017). The coefficient of determination R2 and intra-class correlation coefficient from generalized linear mixed-effects models revisited and expanded. Journal of the Royal Society Interface, 14(134), 20170213. http://dx.doi.org/10.1098/rsif.2017.0213

Paulhus, D. L., & Reid, D. B. (1991). Enhancement and denial in socially desirable responding. Journal of Personality and Social Psychology, 60, 307–317. http://dx.doi.org/10.1037/0022-3514.60.2.307

Pinel, E. C. (1999). Stigma consciousness: The psychological legacy of social stereotypes. Journal of Personality and Social Psychology, 76(1), 114–128. http://dx.doi.org/10.1037/0022-3514.76.1.114

Rajabi-Mashhadi, M. T., Mashhadinejad, H., Ebrahimzadeh, M. H., Golhasani-Keshtan, F., Ebrahimi, H., & Zarei, Z. (2015). The Zarit Caregiver Burden Interview Short Form (ZBI-12) in spouses of veterans with chronic spinal cord injury, validity and reliability of the Persian version. The Archives of Bone and Joint Surgery, 3(1), 56–63. https://pubmed.ncbi.nlm.nih.gov/25692171/

Ritsher, J. B., Otilingam, P. G., & Grajales, M. (2003). Internalized stigma of mental illness: Psychometric properties of a new measure. Psychiatry Research, 121(1), 31–49. https://doi.org/10.1016/j.psychres.2003.08.008

Roach, K. E. (2016). Measurement of health outcomes: Reliability, validity and responsiveness. Journal of Prosthetics and Orthotics, 18(6), 8–12. https://journals.lww.com/jpojournal/fulltext/2006/01001/measurement_of_health_outcomes__reliability,.3.aspx

Robinson, M. A., & Brewster, M. E. (2016). Understanding affiliate stigma faced by heterosexual family and friends of LGB people: A measurement development study. Journal of Family Psychology, 30(3), 353–363. https://doi.org/10.1037/fam0000153

Ronzani, T. M., Soares, R. G., Nery, F. C., & Silveira, P. S. (2017). Adaptação transcultural brasileira da escala de estigma internalizado de transtorno mental – ismi-br. Gerais: Revista Interinstitucional de Psicologia, 10(1), 25–34. http://pepsic.bvsalud.org/scielo.php?script=sci_abstract&pid=S1983-82202017000100004

Saffari, M., Lin, C.-Y., Koenig, H. G., O’Garo, K.-N., Broström, A., & Pakpour, A. H. (2019). A Persian version of the Affiliate Stigma Scale in caregivers of people with dementia. Health Promotion Perspectives, 9(1), 31–39. https://doi.org/10.15171/hpp.2019.04

Salyers, M. P., Fukui, S., Rollins, A. L., Firmin, R., Gearhart, T., Noll, J. P., Williams, S., & Davis, C. J. (2015). Burnout and self-reported quality of care in community mental health. Administration and Policy in Mental Health, 42(1), 61–69. https://doi.org/10.1007/s10488-014-0544-6

Shapurian, R., Hojat, M., & Nayerahmadi, H. (1987). Psychometric characteristics and dimensionality of a Persian version of Rosenberg Self-esteem Scale. Perceptual and Motor Skills, 65(1), 27–34. https://doi.org/10.2466/pms.1987.65.1.27

Souza, A. C., Alexandre, N. M. C., & Guirardello, E. B. (2017). Propriedades psicométricas na avaliação de instrumentos: Avaliação da confiabilidade e da validade. Epidemiologia e Serviços da Saúde, 26(3), 649–659. https://doi.org/10.5123/S1679-49742017000300022

Su, C.-T., Wang, J.-D., & Lin, C.-Y. (2013). Child-rated versus parent-rated quality of life of community-based obese children across gender and grade. Health and Quality of Life Outcomes, 11, 206. https://doi.org/10.1186/1477-7525-11-206

Werner, S., & Shulman, C. (2015). Does type of disability make a difference in affiliate stigma among family caregivers of individuals with autism, intellectual disability or physical disability? Journal of Intellectual Disability Research, 59(3), 272–283. https://doi.org/10.1111/jir.12136

Yanos, P. T., Vayshenker, B., DeLuca, J. S., & O’Connor, L. K. (2017). Development and validation of a scale assessing mental health clinicians’ experiences of associative stigma. Psychiatric Services, 68(10), 1053–1060. https://doi.org/10.1176/appi.ps.201600553

Yao, G., Chung, C.-W., Yu, C.-F., & Wang, J.-D. (2002). Development and verification of validity and reliability of the WHOQOL-BREF Taiwan version. Journal of the Formosan Medical Association, 101(5), 342–351. https://pubmed.ncbi.nlm.nih.gov/12101852/

Yun, Y. S., Jaapar, S., Fadzil, N. A., & Cheng, K. Y. (2018). Validation of the Malay version of the affiliate stigma scale among caregivers of patients with mental illness. The Malaysian Journal of Medical Sciences, 25(6), 127–136. https://doi.org/10.21315/mjms2018.25.6.13

Zisman-Ilani, Y., Levy-Frank, I., Hasson-Ohayon, I., Kravetz, S., Mashiach-Eizenberg, M., & Roe, D. (2013). Measuring the internalized stigma of parents of persons with a serious mental illness: The factor structure of the parents’ internalized stigma of mental illness scale. The Journal of Nervous and Mental Disease, 201(3), 183–187. https://doi.org/10.1097/NMD.0b013e3182845d00