Chidren’s Quality of Life Measuring: Conceptual and Methodological Issues
Main Article Content
Abstract
During the last years, the interest for quality of life and its assessment has increased in Psychology. The possibility of using quality of life as a clinical relevant measure of psychotherapeutic outcomes has been focus of both studies and development of instruments for measuring quality of life, mainly for adults. This article illuminates the lack of studies on quality of life measurement instruments for children as well as the main conceptual and methodological issues in the assessment of children’s quality of life. Recomendations are made about the criteria of evaluation of children’s quality of life measures and their applications.
Downloads
Article Details
Copyright to articles published in The Journal Of Psychology: Theory and Practice belongs to the authors, who grant Mackenzie Presbyterian University the not exclusive rights to publish the content.
References
ACHENBACH, T. M., MCCONAUGHY, S. H., & HOWELL, C. T. Child/adolescent behavioral and emotional problems: Implication of cross-informant correlations for situational specificity, Psychological bulletin, p.101, 1987.
BARRY, M. M. Well-being and life satisfaction as components of quality of life in mental disorders. In: KATSCHNIG, H.; FREEMAN, H. e SARTORIUS, N. (Eds.). Quality of life in mental disorders, New York: Wiley, 1997. 31-42p.
BAKER, F.; INTAGLIATA, J. Quality of life in the evaluation of community support systems, Evaluation & Program Planning, n. 5, 1982.
BATES, J.; PETTIT, G.; DODGE, K. A.; RIDGE, B. Interaction of temperamental resistance to control and restrictive parenting in the development of externalizing behavior. Developmental Psychology, n. 34, 1998.
BIGELOW, D. A.;GAREUA, M. J.;YOUNG, D. J. A quality of life interview. Psychosocial Rehabilitation Journal, n. 14, 1990.
BORTHWICK-DUFFY, S. A. Evaluation and measurement of quality of life: Special considerations for persons with mental retardation. In: SCHALOCK, R. L. (Ed.). Quality of life, Washington, DC: American Association on Mental Retardation, 1996.
BROADHEAD, W. E.; BLAZER, D. G.; GEORGE, L. K.;TSE, C. K. Depression, disability days, and days lost from work in a prospective epidemiologic survey, Journal of the American Medical Association, p. 264,1990.
BRUIL, J. Development of a quality of life instrument for children with chronic illness. Leiden: Health Psychology, Leiden University, 1999.
CARR, A. J.; HIGGINSON, I. J. Using quality of life measures in the clinical setting. British Medical Journal, p. 322, 2001.
CARR, A. J.; GIBSON, B.; ROBINSON, P. G. Is quality of life determined by expectations or experience; British Medical Journal, p. 322, 2001.
CUMMINS, R. A. Assessing quality of life. In: BROWN, R. I. (Ed.). Quality of life for people with disabilities. London: Stanley Thornes (Publishers) Ltd., 1997.
CUMMINS, R. A. Directory of instruments to measure quality of life and cognate areas. Melbourne, Australia: Deakin University, 1995.
EISER, C.;JENNEY, M. E. M. Measuring symptomatic benefit and quality of life in pediatric oncology, British Journal Cancer, n. 73, 1989.
ENDICOTT, J.; NEE, J.; HARRISON, W.; BLUMENTHAL, R. Quality of Life Enjoyment and Satisfaction Questionaire: A new measure, Psychopharmacology Bulletin, n. 29, 1993.
EUROQOL GROUP. EuroQol EQ-50 user guide. Rotterdan: Rotterdan Centre for Health Policy and Law, Erasmus University, 1996.
FELCE, D.; PERRY, J. Quality of life: Its definition and measurement, Research in Developmental Disabilities, n. 16, 1995.
FRISCH, M. B. Quality of life inventory. Waco, TX: Author, 1988.
FRISCH, M. B.Quality of life therapy and assessment in health core, Clinical Psychology: Science and Practice, n. 5, 1998.
FRISCH, M. B. Test manual and treatment guide for the Quality of Life Inventory. Waco, TX: Author, 1992.
FRISCH, M. B.; CORNELL, J.; VILLANUEVA, M.; RETZLAFF, P. J. Clinical validation of the Quality of Life Inventory: A measure of life satisfaction for use in treatment planning and outcome assessment, Psychological Assesment: A journal of Consulting and Clinical Psychology, n. 4, 1992.
GLADIS, M. M.; GOSCHI, E. A.; DISHUK, N. M.; CRITS-CRISTOPH, P. Quality of life: Expanding the scope of clinical significance, Journal of Consulting and Clinical Psychology, n. 67, 1999.
GILL, T. M.; FEINSTEIN, A. R. A critical appraisal of the quality of quality of life measurements, Journal of American Medical Association, n. 272, 1994.
GREENBERG, P. E.; STIGLIN, L. E.; FINKELSTEIN, S. N., & BERNDT, E. R. Depression: A neglected major illness. Journal of Clinical Psychiatry, n. 54, 1993.
HARDING, L. Children’s Quality of Life Assessments: A Review of Generic and Health Related Quality of Life Measures completed by Children and Adolescents, Clinical Psychology and Psychiotherapy, n. 8, 2001.
HARPER, A.; POWER, M. Development of the World Health Organization WHOQOL-BREF Quality of Life Assessment, Psychological Medicine, n. 28, 1998.
HAYS, R. D.; WELLS, K. B.; SHERBOURNE, C. D.; ROGERS, W.; SPRITZER, K. Functioning and well-being outcomes of patients with depression compared with chronic general medical illnesses, Journal of the American Medical Association, n. 52, 1995.
HUGHES, C.; HWANG, R.; KIM, J. H.; EISENMAN, L. T.; KILLIAN, D. J. Quality of life in applied research: A review and analysis of empirical measures, American Journal on Mental Retardation, n. 99, 1995.
HUNT, S. M.; MCKENNA, S. P. Measuring quality of life in psychiatry. In: WALKER, S. R.; ROSSNER, R. M. (Eds.). Quality of life assessment: Key issues in the 1990s, Boston: Kluwer Academic, 1993.
KALRA, L.; ADDINGTON-HALL, J. Who should measure quality of life?, British Medical Journal, n. 322, 2001.
KATSCHNIG, H. How useful is the concept of quality of life in psychiatry? In: H. KATSCHNIG, H. Freeman; SARTORIUS, N. (Eds.). Quality of life in mental disorders. New York: Wiley, 1997.
KENDALL, P. C.; NORTON-FORD, J. D.; GROVE, W. Normative comparisons in therapy outcome. Behavioral Assesment, n. 10, 1988.
LEPLÈGE, A.; HUNT, S. The problem of quality of life in medicine, Journal of the American Medical Association, n. 278, 1997.
MULDOON, M. F.; BARGER, S. D.; FLORY, J. D.; MANUCK, S. B. What are quality of life measurements measuring?, British Medical Journal, n. 316, 1998.
RAVENS-SIEBERER, U.; BULLINGER, M. A. Assessing health-related quality of life in chronically ill children with German KINDL: first psychometric and content analytic results, Quality of Life Research, n. 7, 1998.
SCHMITT, M.;KOOT, M. H. Quality of life Measurement in Children and Adolescents: Issues, Instruments and Applications, Journal of Clinical Psychology, v. 57 (4), 2001.
SHERBOURNE, C. D.; WELLS, K. B.; JUDD, L. L. Functioning and well-being of patients with panic disorder, American Journal of Psychiatry, n. 153, 1996.
SPRANGERS, M. A.;AARONSON, N. K. The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease, Journal of Clinical Epidemiology, n. 45, 1992.
STRUPP. H. H. The tripartite model and the Consumer Reports study, American Psychologist, n. 51, 1996.
TESTA, M. A.; SIMONSON, D. C. Assessment of quality of life outcomes, New England Journal of Medicine, n. 334, 1996.
VERHULST, F. C.; KOOT, H. M.; VAN DER ENDE, J. Differential predictive value of parents’ and teachers’ reports of children’s problem behaviors: A longitudinal study, Journal of Abnormal Child Psychology, n. 22, 1994.
WALLANDER, J. L. Theory driven research in pediatric psychology: A little bit on why and how, Journal of Pediatric Psychology, n. 17, 1992.
WARE, J. E.; SHERBOURNE, C. D. The MOS 36-item short-form health survey ( S-36). Conceptual framework and item selection, Med Care, n. 30, 1992.
WARE, J. E. SF-36 Health Survey: Manual and interpretation guide. Boston: Nimrod Press, 1993.
WIKLUND, I., COMERFORD; M. B.; DIMENAS, E. The relationship between exercise tolerance and quality of life in angina pectoris, Clinical Cardiology, n. 14, 1991.
WOODILL, G.; RENWICK, R.; BROWN, I.; RAPHAEL, D. Being, belonging, becoming: An approach to the quality of life of persons with developmental disabilities. In: D. Goode (Ed.), Quality of life for persons with disabilities: International perspectives and issues. Cambridge, MA: Brookline, 1994.
WORD HEALTH ORGANIZATION. World Health Organization Constitution. Geneva: World Health Organization, 1947.