To Disclose and have Someone to Count On: Infertility and Social Support
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Abstract
Infertile couples seeking treatment experience a social stigma that can lead to the need for privacy and, in turn, compromise their access to social support. This multiple case study, that involved the collection of sociodemographic and health data and interviews with four heterosexual couples accessed by convenience, aimed to examine the perception of the couples about the social support received after the disclosure of the condition of infertility and/or of the assisted reproductive technology treatment. The cases were analysed individually and comparatively. From the couples’ statements, it is highlighted that all of them revealed something about infertility and/or treatment at some point in the process, although some considered not revealing it. Both support and lack of support were perceived from the revelations. The non-disclosure was motivated by self-preservation and by avoidance of social pressure. The findings indicate the importance of psychological intervention to expand the couples’ social support.
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References
Batista, L. A. T., Bretones,W. H. D. & Almeida, R. J. (2016). O impacto da infertilidade: Narrativas de mulheres com sucessivas negativas pelo tratamento de reprodução assistida. Reprodução e Climatério, 31(3), 121– 127. https://doi.org/10.1016/j.recli.2016.05.004
Berger, R., Paul, M. S. & Henshaw, L. A. (2013). Women’s experience of infertility: A multi-systemic perspective. Journal of International Women’s Studies, 14(1), 54–68. https://vc.bridgew.edu/jiws/vol14/iss1/4/
Besharat, M. A., Lashkari, M., & Rezazadeh, M. R. (2014). Explaining adjustment to infertility according to relationship quality, couples’ beliefs and social support. Family Psychology, 1(2), 41–54. https://www.ijfpjournal.ir/article_245497_984db4779d770cd32861a37ca70d2596.pdf?lang=en
Brasil. Conselho Nacional de Saúde. (2012). Resolução nº 466/12. http://bvsms.saude.gov.br/bvs/saudelegis/cns/2013/res0466_12_12_2012.html
Brasil. Conselho Nacional de Saúde. (2016). Resolução nº 510/2016. http://conselho.saude.gov.br/resolucoes/2016/reso510.pdf
Creswell, J. W. (2014). Research design: Qualitative, quantitative, and mixed methods approaches. (4ed.). Los Angeles: SAGE. Cunha, M. C. V., Carvalho, J. A., Albuquerque, R. M., Ludermir, A. B., & Novaes, M. (2008). Infertilidade: Associação com transtornos mentais comuns e a importância do apoio social. Revista de Psiquiatria do Rio Grande do Sul, 30(3), 201–210. https://doi.org/10.1590/S0101-81082008000400009
Değirmenci, F., & Yılmaz, D. V. (2020). The relationship between psychosocial health status and social support of pregnant women. Journal of Psychosomatic Obstetrics & Gynecology, 41(4), 290–297. https://doi.org/10.1080/0167482X.2019.1678021
Ergin, R. N.; Polat, A.; Kars, B.; Öztekin, D.; Sofuoğlu, K., & Çalışkan, E. (2018). Social stigma and familial attitudes related to infertility. Turkish Journal of Obstetrics and Gynecology, 15(1), 46–49. https://doi.org/10.4274/tjod.04307
Gonçalves, T. R., Pawlowski, J., Bandeira, D. R., & Piccinini, C. A. (2011). Avaliação de apoio social em estudos brasileiros: Aspectos conceituais e instrumentos. Ciência & Saúde Coletiva, 16(3), 1755–1769. https://dx.doi.org/10.1590/S1413-81232011000300012
Gradvohl, S. M. O., Osis, M. J. D., & Makuch, M. Y. (2013). Estresse de homens e mulheres que buscam tratamento para infertilidade. Revista Brasileira de Ginecologia e Obstetrícia, 35(6), 255–261. https://dx.doi.org/10.1590/S0100-72032013000600004
Hayashi, E. A. P., & Moriyama, J. S. (2019). Grupo de apoio psicológico a mulheres em situação de infertilidade. Psicologia: Ciência e Profissão, 39, e179820. https://dx.doi.org/10.1590/1982-3703003179820
High, A. C., & Steuber, K. R. (2014). An examination of support (in)adequacy: Types, sources, and consequences of social support among infertile women. Communication Monographs, 81(2), 157–178. https://doi.org/10.1080/03637751.2013.878868
Iordachescu, D. A., Gica, C., Vladislav, E. O., Panaitescu, A. M., Peltecu, G., Furtuna, M. E., & Gica, N. (2021). Emotional disorders, marital adaptation and the moderating role of social support for couples under treatment for infertility. Ginekologia Polska, 92(2), 98–104. https://doi.org/10.5603/GP.a2020.0173
Johnson, M. C. (2020). “¿Por qué acá nadie lo cuenta?” Estrategias para comunicar y socializar la experiencia con las TRHA. In N. S. Lima & M. F. Rossi (Eds.), Desafíos actuales de la clínica de la reproducción humana asistida (pp.155-178). San Luis: Nueva Editorial Universitaria – U.N.S.L. Khalid, A. & Dawood, S. (2020). Social support, self-efficacy, cognitive coping, and psychological distress in infertile women. Archives of Gynecology and Obstetrics, 302, 423–430. https://doi.org/10.1007/s00404-020-05614-2
Kiesswetter, M., Marsoner, H., Luehwink, A., Fistarol, M., Mahlknecht, A. & Duschek, S. (2019). Impairments in life satisfaction in infertility: Associations with perceived stress, affectivity, partnership quality, social support and the desire to have a child. Behavioral Medicine, 46(2), 130–141, https://doi.org/10.1 080/08964289.2018.1564897
Kroemeke, A., & Kubicka, E. (2018). Positive and negative adjustment in couples undergoing infertility treatment: The impact of support exchange. PLOS ONE, 13(6), e0200124. https://doi.org/10.1371/journal.pone.0200124
Lopes, R. C. S., Piccinini, C. A., Dornelles, L. M. N., Silva, I. M., & Passos, E. P. (2007). Transição para a parentalidade e a relação conjugal no contexto da reprodução assistida: Da gestação ao primeiro ano de vida do bebê. Projeto de pesquisa não publicado. Instituto de Psicologia, Universidade Federal do Rio Grande do Sul. Porto Alegre, Brasil. Maffezzolli, E. C. F., & Boehs, C. G. E. (2008). Uma reflexão sobre o estudo de caso como método de pesquisa. Revista da FAE, 11(1), 95–110. https://revistafae.fae.edu/revistafae/article/viewFile/262/180
Major, B., & O’Brien, L. T. (2005). The social psychology of stigma. Annual Review of Psychology, 56(1), 393– 421. https://doi.org/10.1146/annurev.psych.56.091103.070137
Marques, P. P., & Morais, N. A. (2018). A vivência de casais inférteis diante das tentativas inexitosas de reprodução assistida. Avances en Psicología Lationoamericana, 36(2), 299–314. https://doi.org/10.12804/revistas.urosario.edu.co/apl/a.4315
Martins, M. V., Peterson, B. D., Costa, P., Costa, M. E., Lund, R., & Schmidt, L. (2012). Interactive effects of social support and disclosure on fertility-related stress. Journal of Social and Personal Relationships, 30(4), 371–388. https://doi.org/10.1177/0265407512456672
Moutzouri, M., Sarantaki, A., & Gourounti, K. (2021). The association of cognitive representations with psychological adjustment in experience of infertility and fertility treatment: A systematic review. European Journal of Midwifery, 5, 33. https://doi.org/10.18332/ejm/138598
Nascimento, F. R. M., & Térzis, A. (2010) Adiamento do projeto parental: Um estudo psicanalítico com casais que enfrentam a esterilidade. Psicologia em Revista, 16(1), 103–124. http://pepsic.bvsalud.org/scielo.php?script=sci_arttext&pid=S1677-11682010000100008&lng=pt&tlng=pt
Rodriguez, M. S., & Cohen, S. (1998). Social support. Encyclopedia of Mental Health, 3(2), 535–544. Rooney, K. L., & Domar, A. D. (2018) The relationship between stress and infertility. Dialogues in Clinical Neuroscience, 20(1), 41–47. https://doi.org/10.31887/DCNS.2018.20.1/klrooney
Saleem, S., Qureshi, N. S., & Mahmood, Z. (2019). Attachment, perceived social support and mental health problems in women with primary infertility. International Journal of Reproduction, Contraception, Obstetrics and Gynecology, 8(6), 2533. https://link.gale.com/apps/doc/A593352940/HRCA?u=anon~c68375c3&sid=googleScholar&xid=63bf46d6
Simionescu, G., Doroftei, B., Maftei, R., Obreja, B., Anton, E., Grab, D., & Anton, C. (2021). The complex relationship between infertility and psychological distress (Review). Experimental and Therapeutic Medicine, 21, 306. https://doi.org/10.3892/etm.2021.9737
Souza, K. K. P. C., & Alves, O. F. (2016). As principais técnicas de reprodução humana assistida. Saúde & Ciência em Ação. Revista Acadêmica do Instituto de Ciências da Saúde, 2(1), 26–37. http://www.revistas.unifan.edu.br/index.php/RevistaICS/article/view/182/139
Spotorno, P. M., Silva, I. M., & Lopes, R. C. S. (2008) Expectativas e sentimentos de mulheres em situação de reprodução medicamente assistida. Aletheia, 28, 104–118. http://pepsic.bvsalud.org/scielo.php?script=sci_arttext&pid=S1413-03942008000200009&lng=pt&tlng=pt
Straube, K. M. (2019). Infertilidade, estigma e tratamentos reprodutivos: Da família pensada à família vivida. Curitiba: Juruá. Taebi, M., Kariman, N., Montazeri, A., & Alavi Majd, H. (2021). Infertility stigma: A qualitative study on feelings and experiences of infertile women. International Journal of Fertility & Sterility, 15(3), 189–196. https://doi.org/10.22074/IJFS.2021.139093.1039
Uchino, B. N., Bowen, K., Kent de Grey, R., Mikel, J., & Fisher, E. B. (2018). Social support and physical health: Models, mechanisms, and opportunities. In: E. B., Fisher (Ed.). Principles and Concepts of Behavioral Medicine. Springer: New York, NY. https://doi.org/10.1007/978-0-387-93826-4_12
Valadares, R. R. F., Alves, L. A. M. T., & Bezerra, M. L. R. (2021). A enfermagem no contexto da reprodução assistida: Uma revisão integrativa da literatura. Research, Society and Development, 10(15), e137101522801. https://doi.org/10.33448/rsd-v10i15.22801
Vatanparast, M., Ardekani, S. M. Y., Anvari, M., Kalantari, A., Yaghmaie, F., & Royani, Z. (2022). Resilience as the predictor of quality of life in the infertile couples as the most neglected and silent minorities. Journal of Reproductive and Infant Psychology, 40(3), 216–227. https://doi.org/10.1080/02646838.2020.1843613
Wang, J., Mann, F., Lloyd-Evans, B., Ruimin, M., & Johnson, S. (2018). Associations between loneliness and perceived social support and outcomes of mental health problems: A systematic review. BMC Psychiatry, 18(156). https://doi.org/10.1186/s12888-018-1736-5
World Health Organization (2020). Infertility. https://www.who.int/news-room/fact-sheets/detail/infertility. Worthington, A. K., Burke, E. E., & Leahy, C. (2019). A comprehensive examination of infertility stigma among fertile and infertile women in the United States. ASRM Fertility and Sterility, 112(3), e378. https://doi.org/10.1016/j.fertnstert.2019.07.1082
Yin, R. K. (2005). Estudo de caso: Planejamento e métodos (3ed.). Porto Alegre: Bookman. Zurlo, M. C.; Cattaneo Della Volta, M. F., & Vallone, F. (2020). Infertility-related stress and psychological health outcomes in infertile couples undergoing medical treatments: Testing a multi-dimensional model. Journal of Clinical Psychology in Medical Settings, 27, 662–676. https://doi.org/10.1007/s10880-019-09653-z