One world. One autism? A Commentary on Using an Intersectionality Framework to Study Autism in Low-resourced Communities

Araripe, B., Montiel-Nava, C., Bordini, D., Cunha, G. R., Garrido, G., Cukier, S., ... & Paula, C. S. (2022). Profile of Service Use and Barriers to Access to Care among Brazilian Children and Adolescents with Autism Spectrum Disorders. Brain Sciences, 12(10), 1421. https://doi.org/10.3390/brainsci12101421

Center for Disease Control and Prevention. (2021). Spotlight on: Racial and ethnic differences in children identified with autism spectrum disorder (ASD). Retrieved November 29, 2022, from https://www.cdc.gov/ncbddd/autism/addm-community-report/differences-in-children.html

Divan, G., Bhavnani, S., Leadbitter, K., Ellis, C., Dasgupta, J., Abubakar, A., Elsabbagh, M., Hamdani, S. U., Servili, C., Patel, V., & Green, J. (2021). Annual Research Review: Achieving universal health coverage for young children with autism spectrum disorder in low- and middle-income countries: a review of reviews. J Child Psychol Psychiatry, 62(5), 514–535. https://doi.org/10.1111/jcpp.13404

Durkin, M. S., Elsabbagh, M., Barbaro, J., Gladstone, M., Happe, F., Hoekstra, R. A., Lee, L. C., Rattazzi, A., Stapel-Wax, J., Stone, W. L., Tager-Flusberg, H., Thurm, A., Tomlinson, M., & Shih, A. (2015). Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide. Autism Res, 8(5), 473–476. https://doi.org/10.1002/aur.1575

Elsabbagh, M., Divan, G., Koh, Y. J., Kim, Y. S., Kauchali, S., Marcin, C., Montiel-Nava, C., Patel, V., Paula, C. S., Wang, C., Yasamy, M. T., & Fombonne, E. (2012, Jun). Global prevalence of autism and other pervasive developmental disorders. Autism Res, 5(3), 160-179. https://doi.org/10.1002/aur.239

Golson, M. E., Haverkamp, C. R., McClain, M. B., Schwartz, S. E., Ha, J., Harris, B., & Benallie, K. J. (2022). Influences of student race/ethnicity and gender on autism special education classification considerations. Autism, 26(6), 1423–1435. https://doi.org/10.1177/13623613211050440

Hall, J. P., Batza, K., Streed, C. G., Jr., Boyd, B. A., & Kurth, N. K. (2020). Health disparities among sexual and gender minorities with autism spectrum disorder. Journal of Autism and Developmental Disorders, 50(8), 3071–3077. https://doiorg.ezproxy.lib.utexas.edu/10.1007/s10803-020-04399-2

Hillier A, Gallop N, Mendes E, Tellez D, Buckingham A, Nizami A, OToole D. LGBTQ + and autism spectrum disorder: Experiences and challenges. Int J Transgend Health. 2019 Apr 22;21(1):98-110. doi: 10.1080/15532739.2019.1594484.

Hoekstra RA, Girma F, Tekola B, Yenus Z. Nothing about us without us: the importance of local collaboration and engagement in the global study of autism. BJPsych Int. 2018 May;15(2):40-43. doi: 10.1192/bji.2017.26.

Judd, K., & McKinnon, M. (2021). A Systematic Map of Inclusion, Equity and Diversity in Science Communication Research: Do We Practice what We Preach?. Frontiers in Communication, 6. https://doi.org/10.3389/fcomm.2021.744365

Lindly, O. J., Zuckerman, K. E., & Kuhlthau, K. A. (2019, Aug). Healthcare access and services use among US children with autism spectrum disorder. Autism, 23(6), 1419-1430. https://doi.org/10.1177/1362361318815237

Loomes, R., Hull, L., & Mandy, W. P. L. (2017). What is the male-to-female ratio in autism spectrum disorder? A systematic review and meta-analysis. Journal of the American Academy of Child & Adolescent Psychiatry, 56(6), 466–474. https://doi.org/10.1016/j.jaac.2017.03.013

Magana, S., Lopez, K., Aguinaga, A., & Morton, H. (2013). Access to diagnosis and treatment services among Latino children with autism spectrum disorders. Intellect Dev Disabil, 51(3), 141-153. https://doi.org/10.1352/1934-9556-51.3.141

Magaña, S., Parish, S. L., & Son, E. (2015). Have racial and ethnic disparities in the quality of healthcare relationships changed for children with developmental disabilities and ASD? American Journal on Intellectual and Developmental Disabilities, 120(6), 504–513. https://doi.org/10.1352/1944-7558-120.6.504

Montiel-Nava,C., Vargas, I., Gonzalez-Avila, Z., Montenegro, MC., Ramirez, AC. (2022). Pilgrimage for an Autism Diagnosis: A Study of Venezuelan Parents’ Experiences. Department of Psychological Sciences. University of Texas Rio Grande Valle.

Montiel-Nava, C., Cukier, S., Garrido, G., Valdez, D., Paula, C. S., García, R., ... & Rattazzi, A. (2020). Service encounters across the lifespan in individuals with autism spectrum disorders: Results from a multisite study in Latin America. Research in Autism Spectrum Disorders, 79, 101670.

Nowell, K. P., Brewton, C. M., Allain, E., & Mire, S. S. (2015, Sep). The Influence of Demographic Factors on the Identification of Autism Spectrum Disorder: A Review and Call for Research. Review Journal of Autism and Developmental Disorders, 2(3), 300

–309. https://doi.org/10.1007/s40489-015-0053-x

Paula, C. S., Cukier, S., Cunha, G. R., Irarrazaval, M., Montiel-Nava, C., Garcia, R., Rosoli, A., Valdez, D., Bordini, D., Shih, A., Garrido, G., & Rattazzi, A. (2020). Challenges, priorities, barriers to care, and stigma in families of people with autism: Similarities and differences among six Latin American countries. Autism, 24(8), 2228-2242. https://doi.org/10.1177/1362361320940073

Rathje, S. (2009). The Definition of Culture: An Application-Oriented Overhaul (September 8, 2009). Interculture Journal, p. 35, https://ssrn.com/abstract=1533439

Sweileh, W.M., Wickramage, K., Pottie, K. et al. Bibliometric analysis of global migration health research in peer-reviewed literature (2000–2016). BMC Public Health 18, 777 (2018). https://doi.org/10.1186/s12889-018-5689-x

West, E. A., Travers, J. C., Kemper, T. D., Liberty, L. M., Cote, D. L., McCollow, M. M., & Stansberry Brusnahan, L. L. (2016). Racial and ethnic diversity of participants in research supporting evidence-based practices for learners with autism spectrum disorder. The Journal of Special Education, 50(3), 151–163. https://doi.org/10.1177/0022466916632495

Zeidan J, Fombonne E, Scorah J, Ibrahim A, Durkin MS, Saxena S, Yusuf A, Shih A, Elsabbagh M. Global prevalence of autism: A systematic review update. Autism Res. 2022 May;15(5):778–790. doi: 10.1002/aur.2696.